Some of y’all have been following my cancer journey, so I’ve been open about my experiences in the hope that it helps another person who might be facing the same journey.
Yesterday, I went to the clinic for my regularly scheduled Jemperli infusion. My third one, or it was supposed to be. Jemperli is a medicine I was tolerating well, that only required me to come in every six weeks. I had no side effects that I could detect. Everything was good.
Well, after fully reviewing all the results from my surgery on April 1st, which involved removing all my girlie parts plus my omentum, he determined there were still microscopic “remnants” of cancer in my body, so he wanted to switch my treatment protocol to another set of meds which would more aggressively treat the cancer that remains.
I will now be receiving infusions of another immunotherapy drug called Keytruda, plus a daily pill called Lenvima. As well, I will be going for infusions every three weeks. This will continue, possibly for the rest of my life, or perhaps (hopefully), until I reach remission and I’m deemed “cured.”
I got my first Keytruda infusion yesterday. After I came home, I felt completely wiped out. I sat watching TV for the remainder of the day and went to bed early, sleeping like a rock. For the next few days, I’ll be very conscious of what my body is telling me so I know what this experience will be going forward and whether I need to block out days on my calendar, like I did during chemo, to make sure I can plan my life better.
The list of normal aftereffects of this protocol are many. Fatigue (check), diarrhea, shortness of breath, kidney problems, liver problems, headaches, rapid heartbeat, skin rashes, mouth sores, dizziness, and on and on. Whether I have all or some of these “usual” aftereffects, I’ll let you know.
So, yes, I’m not happy, but my oncologist did start with the positive news that my CA-125 cancer antigen test number has improved again. At my worst, it was 1100. Now it is 15, which is within “normal” range. So, yes, I’m doing so much better, but I’m not happy about more frequent treatments and a stronger medication protocol, but it is what it is.
The most important thing I’m going to focus on right now and going forward is that I’m still here. My family keeps me grounded and happy. I won’t go without a hard damn fight.